Join Us for our 2nd Annual Ride4Avi

Motorcycle & Family Fun Day Events

Contact Us: info@ride4avi.com

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Avi's Donation Website

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Motorcycle Ride

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Sunday,

 

September 25, 2011

 

12pm - 3:30pm

 

 Knights of Columbus hall

Shunpike Rd and Harvard St.

Summit, NJ

 

 

 
Text Box: Suggested minimum tax deductible donation Adults $10 Children $5 Includes: BBQ lunch and Live Entertainment Ala Carte activities include: Bounce house, velcro wall, face painting, temporary tattoos, spin art, games & prizes, raffles, cotton candy, popcorn, sno cones, fall festivities and more... Text Box: 2nd Annual Ride 4 Avi Charity Motorcycle Ride Text Box: Avedis Akian Is a 9 year old boy from Summit, NJ who was diagnosed in January 2009 with the rare disease, ataxia telangiectasia. Avedis dreams of growing up to be a chef and of owning a shiny, blue motorcycle. Avedis’ parents are committed to raising money to find a cure or life saving treatment for his illness and hope you will join them.

  About  Ataxia Telangiectasia:

 

∙  is a rare genetic disorder that affect approximately 500 children/young adults in the U.S.

∙  attacks in early childhood after a seemingly healthy infancy

∙  is characterized by a progressive loss of coordination that affects the child’s abilities to walk, talk, eat, read,  and write.

 

∙ predisposes the child to cancers including leukemia and lymphoma and severely compromises the child’s immune system

 

∙ Children maintain normal to above normal intelligence and are keenly aware that they are being trapped inside a body that no longer works

 

∙ Currently there is no treatment to slow the progression of the disease and no cure